I have found over the past 8 years that many in the US have based life-decisions, not around doing what they love, but more so around whether or not they would have medical coverage. I am one who had done the same for a few years, as I suffer from a condition called Juvenile Myoclonic Epilepsy.
I worked in a 'real job', so-called 'real' as this implies the negative, from 2004 - 2007. One of the very reasons I started working at Voice123 was because my last job at AIG (yes...the very one now being bailed out by the US government), had management that chose not understand why I could not always make it to work on time. This very action led to much stress, which in turn, led to the need for medical care that was nearly putting me in the poor house by taking money out of my weekly paycheck to pay for something that could not cover a $45,000, 7-day/night stay in the hospital, which I had to do for a medical test.
So, how in the world could it be considered wise to quit and go back into the entertainment field which offers no direct promise of medical care? I asked myself this question for years and came up with something, 'What came first? The chicken or the egg?'.
- Was it 'stress' that led to me needing insurance for medical care for epilepsy? No.
- Was it working at AIG, instead of Voice123 , the industry I loved, truly helping others do what they love, thereby opening up the option for me to get back into a field I love, and giving me the peace of mind to no longer have stress as a factor at the job place, which was in fact triggering the care for epilepsy I could not afford anyway? Yes, and it took a long time to see this for myself.
- What did I do next? I married my fiance quicker than planned and got on her insurance plan. Amazing...some get married just to stay in the USA. I got married because I already live here, and could not afford it. I believe in nursing my wounded.
Maybe I am taking a daring view at dealing with a medical issue in a 'fear for profit' society, but the plain and simple truth is that since I have started working in the career I love, and working at it, the daily satisfaction that comes with it is what keeps me healthy. As many of Voice123 customers may have already noticed, you will see my email and forum replies coming at all hours of the day and night. I was very stressed at AIG knowing this is a smaller 24/7 world, and found it irresponsible to hold our customers to our own 9 to 5 schedule because when someone needs my assistance, they need it. Aside from that, with JME, which you can read about how others deal on epilepsy.com, you will see that the old 'get up and go' for some is not easy when you suffer from it. I have had seizures typically either late at night, in my sleep, right after I have woken up, or when I have been awoken out of a sound sleep.
So...why write all of this? What is my point?
- I wish to reach out to others, who may experience similar dilemmas, or have similar reasons for not doing what they love. I am no doctor, but I know peace of mind leads to a healthier body and lifestyle.
- I wish to say to every union that negotiates a contract and offers medical insurance, I hope you understand that 'caring about all people' is most important, when thinking of how to stay alive for the bigger picture. Living in NYC, pre and post 9/11, I have seen that face to face.
- I hope that anyone that has ever had to cancel a family dinner, a meeting with an agent, or a job you have landed, basically something that meant a great deal to you, that you know that people out there do care, and I met a group of them in Voice123. So, I hope you can always feel free to write me about it here.
- I also hope the world realizes that the failure of every great society begins when people stop caring about each other.
Life is funny. I was diagnosed with JME the day I found out a good friend was murdered on his birthday when I was only 18 years old, and had my first seizure that night, 8/1/1991. I do not know how many of you believe in coincidence or not, but he shared the same birthday as Voice123's founder, Alex, the guy who hired me to work for Voice123. I love my wife because she knows that getting married to survive does not mean you love someone any less.
It just makes me think that when you know you are doing something you love, and working at it, things will fall into place in the oddest ways that tell you, 'I should be doing this.' Even then, you still have to protect what you love, while caring for others.
I am allowed to do that here, so I thank you for reading this.
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